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CC BY 4.0 · Indian Journal of Neurotrauma
DOI: 10.1055/s-0044-1778732
Original Article

An Individualized Educational Package for Improving Knowledge and Practices of Caregivers of Patients with Spinal Cord Injury: A Quasiexperimental Study

Indu Punia
1   College of Nursing, All India Institute of Medical Sciences, New Delhi, India
,
Manju A. K. Rajora 
1   College of Nursing, All India Institute of Medical Sciences, New Delhi, India
,
Deepika Cecil Khakha
1   College of Nursing, All India Institute of Medical Sciences, New Delhi, India
2   Govt. of India, Ministry of Health and Family Welfare, New Delhi, India.
,
Deepak Agarwal 
3   Department of Neurosurgery, All India Institute of Medical Sciences, New Delhi, India
› Author Affiliations Funding None.
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Abstract

Introduction Globally, traumatic spinal cord injury occurs at a rate of 13 to 53 cases per million populations. These patients tend to get dependent on hospital staff as well as caregivers for their activities of daily living. There are insufficient data available on whether the caregivers have adequate knowledge and required skills to perform the same.

Aim Our aim was to evaluate the impact of an individualized educational package on the knowledge and practices of caregivers of patients with spinal cord injury.

Methods The caregivers (n = 30) were recruited in the quasi-experimental study by using a nonequivalent, control group design using the TREND checklist. Study subjects were divided into two groups, that is, control and experimental. The intervention was delivered through an educational package in the experimental group, and no intervention was given to the control group. The educational package was delivered by dedicated registered nurse. Ethical approval was taken from the ethical committee, and informed consent was obtained from the study participants. Data were analyzed using STATA version 16 and SPSS version 20.

Result The mean age of patients was 34.6 + 2.7 years, and majority (90%) were males. The most common cause of spinal cord injury was fall from height in 53.3% patients followed by road traffic accidents in 36.6% patients. The mean posttest knowledge score (30.7 + 8.6) of subjects in the experimental group was significantly higher than the control group (18.4 + 5.3). Also, the mean posttest practice score (54.3 + 9) of subjects in the experimental group was significantly higher than the control group (35.9 + 6.8).

Conclusion Educating caregivers (relatives) can dramatically improve the quality of life of patients as well as prevent complications and rehospitalizations. A dedicated nurse educator should be posted in spinal cord injury wards to deliver such educational packages.

Keywords

spinal cord injury - knowledge - practices - caregivers - individualized educational package

Contribution Details

I.P., M.A.K.R., D.C.K., and D.A. contributed to conceptualization, design, definition of intellectual content, methodology, validation, investigation, supervision, data analysis, writing (review and editing), and manuscript review. I.P. contributed to data acquisition. I.P. and M.A.K.R. contributed to literature search, statistical analysis, and writing the original draft. D.C.K. also contributed to writing the original draft.


Ethical Approval

The study received ethical approval from the Institutional Ethics Committee, with ref. no. IECPG- 131/28.02.2019 dated 05.03.2019.




Publication History

Article published online:
31 January 2024

© 2024. The Author(s). This is an open access article published by Thieme under the terms of the Creative Commons Attribution License, permitting unrestricted use, distribution, and reproduction so long as the original work is properly cited. (https://creativecommons.org/licenses/by/4.0/)

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