Yearb Med Inform 2012; 21(01): 56-64
DOI: 10.1055/s-0038-1639431
Working Group Contribution
Georg Thieme Verlag KG Stuttgart

Empowering Patients: Making Health Information and Systems Safer for Patients and the Public

Contribution of the IMIA Health Informatics for Patient Safety Working Group
E. M. Borycki
1   IMIA Patient Safety Working Group Co-Chair, University of Victoria, Victoria, British Columbia, Canada
,
F. M. S. Househ
2   King Saud Bin Abdulaziz University for Health Science, College of Public Health and Health Informatics, Riyadh, Saudi Arabia
,
A. W. Kushniruk
1   IMIA Patient Safety Working Group Co-Chair, University of Victoria, Victoria, British Columbia, Canada
,
C. Nohr
3   Aalborg University, Department of Development and Planning, Virtual Centre for Health Informatics, Aalborg, Denmark
,
H. Takeda
4   IMIA Patient Safety Working Group Co-Chair, Jikei Institute, Osaka, Japan
› Author Affiliations
Further Information

Publication History

Publication Date:
10 March 2018 (online)

Summary

Objectives

The objectives of this paper are to explore issues and perspectives from four regions of the world where health information systems are contributing to patient empowerment and influencing patient safety.

Methods

Members of the IMIA Working Group for Health Information Systems Safety came together to explore global issues at the intersection of health information systems safety, patient empowerment and patient safety. The group carried out a review and synthesis of the empirical and grey literature in four different regions/countries of the world that have differing health information system safety priorities.

Results

Regions/countries from differing parts of the world are developing: (1) high quality, safe information for individuals to use in their health related decision making, (2) patient portals and testing them for their safety, (3) methods for identifying unsafe health information system features and functions, and (4) ways of engaging citizens in identifying unsafe features and functions of health information systems.

Conclusions

Internationally, there has been a rise in the number of health information systems and technologies that are being developed to support patient care. The amount of health information available on the World Wide Web (WWW), and the use of mobile phone software to support consumer health behaviours and self-management of chronic illnesses has also grown. The use of some of these health informationsystems and technologies has helped citizens to improve their health status (e.g. patient portals, mobile phones). However, the safety of these systems and technologies has come into question. As a result, there is a need to refine these systems and ensure theirsafetywhentheyareusedbypatientsandtheirfamilies.

 
  • References

  • 1 Eysenbach G, Powell J, Kuss O, Eun-Ryoung S. Empirical studies assessing the quality of health information for consumers on the World Wide Web. JAMA 2002; 20 (287) 2691-700.
  • 2 Borycki E. M-Health: Can chronic obstructive pulmonary disease patient use mobile phones and associated software to self-manage their disease. Cure for Kids Summit. June 9-11, 2011
  • 3 Demiris G, Afrin LB, Speedie S, Courtney KL, Sondi M, Vimarlund V. et al. Patient-centred applications: Use of information technology to promote disease management and wellness: A white paper by the AMIA knowledge in motion working group. J Am Med Inform Assoc 2008; 15 (01) 8-13.
  • 4 Altuwaijri MM. Empowering patients and health professionals in the Arab World. The King Abdullah bin Abdulaziz Arabic Health Encyclopedia on the Web. Yearb Med Inform 2011; 125-30.
  • 5 Sammenhængende Digital Sundhed i Danmark: National strategi for digitalisering af sundhedsvæsenet 2008 – 2012. [Connected digital health in Denmark: National strategy for digitalizing public health 2008-2012] Available at: http://nsi.dk/Maal-og-Milepaele/∼/media/omNSI/SDSD_Strategi_2008_12.ashx
  • 6 van der Sijs H, Aarts J, van Gelder T, Berg M, Vulto A. Turning off frequently overridden drug alerts: Limited opportunities for doing it safely. JAMIA 2008; 15 (04) 439-448.
  • 7 Ash JS, Sittig DF, Dykstra RH, Guappone K, Carpenter JD, Seshadri V. Categorizing the unintended sociotechnical consequences of computerized provider order entry. Int J Med Inform 2007; 76S: S21-S27.
  • 8 Koppel R, Metlay JP, Cohen A. et al. Role of computerized physician order entry systems in facilitating medication errors. JAMA 2005; 293: 1197-203.
  • 9 Kushniruk AW, Triola MM, Stein B, Borycki EM, Kannry JL. Technology induced error and usability: The relationship between usability problems and prescription errors when using a handheld application. Int J Med Inform 2005; 74 (7-8): 519-26.
  • 10 Borycki EM, Kushniruk AW. Where do technology-induced errors come from? Towards a model for conceptualizing and diagnosing errors caused by technology. In: Kushniruk AW, Borycki EM. editors. Human, Social and Organizational Aspects of Health Information Systems. Hershey, Pennsylvania: IGI global; 2008: 146-66.
  • 11 Borycki EM, Keay L. Methods to assess the safety of health information systems. Healthc Q 2010; 13: 49-54.
  • 12 Carvalho CJ, Borycki EM, Kushniruk AW. Ensuring the safety of health information systems: Using heuristics for patient safety. Healthc Q 2009; 12: 49-54.
  • 13 Kushniruk AW, Borycki EM, Kuwata S, Kannry J. Predicting changes in workflow resulting from healthcare information systems: Ensuring the safety of healthcare. Healthc Q 2006; 09: 78-82.
  • 14 Borycki EM, Kushniruk A, Keay E, Nicoll J, Anderson J, Anderson M. Towards an integrated simulation approach for predicting and preventing technology-induced errors in healthcare: Implications for healthcare decision-makers. Healthc Q 2009; 12: 90-6.
  • 15 Ash JS, Sitting DF, Poon EG, Guappone K, Campbell E, Dykstra RH. The extent and importance of unintended consequences related to computerized provider order entry. JAm Med Inform Assoc 2007; 14 (04) 415-23.
  • 16 Horsky J, Kuperman GL, Patel VL. Case Report: Comprehensive Analysis of a Medication Dosing Error Related to CPOE. J Am Med Inform Assoc 2005; 12 (04) 377-82.
  • 17 Schnipper JL, Gandhi TK, Wald JS, Grant RW, Poon EG, Volk LA. et al. Design and implementation of a web-based patient portal linked to an electronic health record designed to improve medication safety: The Patient Gateway medications module. Inform Prim Care 2008; 16: 147-55.
  • 18 Medline Plus. Trusted information for you. http://www.nlm.nih.gov/medlineplus/ [accessed on 13-03-2012]
  • 19 Hassol A, Walker JM, Kidder JM, Rokia K, Young D, Pierson S. et al. Patient experiences and attitudes about access to a patient electronic health care record and linked web messaging. J Am Med Inform Assoc 2004; 11: 505-13.
  • 20 Hilton JF, Barkoff L, Chang O, Halperin L, Ratanwongsa N, Sarkar U. et al. A cross-sectional study of barriers to personal health record use among patients attending a safety-net clinic. PLoS One 2012; 07 (02) e31888.
  • 21 Cimino JJ, Patel VL, Kushniruk AW. The patient clinical information system (PatCIS): Technical solutions for and experience with giving patients access to their electronic medical records. Int J Med Inform 2002; 68: 113-27.
  • 22 Masys D, Baker D, Butros A, Cowels KE. Giving patients access to their medical record via the Internet: The PCASSO experience. J Am Med Inform Assoc 2002; 09: 181-91.
  • 23 Alahmadi HA. Assessment of patient safety culture in Saudi Arabian hospitals. Qual Saf Health Care 2010; Oct;19 (05) e17. Epub 2010 Apr 29.
  • 24 Walston SL, Al-Omar BA, Al-Mutari FA. Factors affecting the climate of hospital patient safety: a study of hospitals in Saudi Arabia. Int J Health Care Qual Assur 2010; 23 (01) 35-50.
  • 25 Al-Ahmadi TA. Measuring Patient Safety Culture in Riyadh’s Hospitals: A Comparison between Public and Private Hospitals. J Egypt Public Health Assoc 2009; 84 (5-6): 479-500.
  • 26 Internet World Stats. Web Access. http://www.internetworldstats.com/middle.htm [accessed on 27-02-2012]
  • 27 The Personal Health Working Group. Connecting for health: A public-private collaborative. The Markle Foundation; 2003
  • 28 Halamka JD, Mandl K D, Tang PC. Early experiences with personal health records. J Am Med Inform Assoc 2008; 15: 1-7.
  • 29 Kaelber DC, Ashish KJ, Johnston D, Middleton B, Bates DW. A research agenda for personal health records. J Am Med Inform Assoc 2008; 15: 729-36.
  • 30 Danske Regioner: Pejlemærker for sundheds-it 2010. Available at: http://e-pages.dk/regioner/31/ [accessed on 13-03-2012]
  • 31 http://www.dpsd.dk/ [accessed on 13-03-2012]
  • 32 European Commission DG Enterprise and Industry Directorate F-Consumer Good Unit F3-Cosmetic and Medical Devices: Guidelines on a medical device vigilance system. MEDDEV 2.12-1 rev 6, December 2009
  • 33 The National Agency for Patients’ Rights and Complaints. http://www.patientombuddet.dk/ [accessed on 13-03-2012]
  • 34 Telus Personal Health Record. http://telushealthrecord.com/webconcepteur/web/TSS/en/phr/nav/faq.html [accessed on 13-03-2012]
  • 35 Hashimoto M. Safety management activities of Yokohama City University Hospital—safety management is the platform of quality improvement (in Japanese); abstract. http://www.ncbi.nlm.nih.gov/pubmed/12624976
  • 36 Starkey LJ, Maeda S. Doctor as criminal; reporting of patients deaths to the police and criminal prosecution of healthcare providers in Japan. BMC Health Serv Res 2010; 10: 53-8.
  • 37 Leflar R. The Regulation of Medical Malpractice in Japan. Clin Orthop Relat Res 2008; 467 (02) 443-9.
  • 38 http://www.univ-hosp.net/ (in Japanese) [accessed on 13-03-2012]
  • 39 http://www.hosp.med.osaka-u.ac.jp/home/hp-cqm/ingai/english/index.html [accessed on 13-03-2012]
  • 40 http://jcqhc.or.jp/pdf/top/english.pdf [accessed on 13-03-2012]
  • 41 http://www.jstage.jst.go.jp/browse/jsqsh [accessed on 13-03-2012]
  • 42 http://kyodokodo.jp/ (in Japanese) [accessed on 13-03-2012]
  • 43 http://www.ghsj.ac.jp (in Japanese) [accessed on 13-03-2012]
  • 44 Tang PC, Ash JS, Bates DW, Overhage JM, Sands DZ. Personal health records: Definitions, benefits and strategies for overcoming barriers to adoption. J Am Med Inform Assoc 2003; 13 (02) 121-6.
  • 45 Takeda H. et al. Health care quality management by means of an incident report system and an electronic patient record system. Int J Med 2003; 69 (02) 285-293. 2003.
  • 46 Nakajima K, Takeda H. The use of e-learning in patient safety education. Qual Saf Health Cre 2008; 17: e1.
  • 47 http://www.jahis.jp/members/data_list/data0204/ (in Japanese)
  • 48 http://www.kantei.go.jp/jp/singi/it2/iryoujyouhou/dai1/siryou5_1.pdf (in Japanese) [accessed on 13-03-2012]
  • 49 Matsumura Y, Kurabayashi N, Iwasaki T, Sugaya S, Ueda K, Mineno T. et al. A scheme for assuring lifelong readability in computer based medical records. Stud Health Technol Inform 2010; 160 (Pt 1): 91-5.
  • 50 Wright A, Poon EG, Wald J, Feblowitz J, Pang JE, Schipper JL. et al. Randomized clinical control trial of health maintenance reminders provided directly to patients through an electronic PHR. J Gen Intern Med 2012; Jan; 27 (01) 85-92.