The Oregis Dashboard: Web-based Ophthalmic Research Benchmarking in Germany

Abstract

Introduction The oregis registry operated by the German Ophthalmological Society (DOG) serves as a central digital platform for collecting and analysing ophthalmological healthcare data in Germany. The aim of oregis is to provide a comprehensive picture of the current healthcare situation and promote healthcare research using real-world-data from inpatient and outpatient facilities. Since its launch in 2020, oregis has continuously expanded its database to enable scientific analyses on a wide range of topics. This paper presents the new dashboard feature allowing participating centres to compare their own patient data with aggregated data in real time while also covering privacy aspects of the system.

Materials and Methods The oregis steering committee opted to implement the oregis dashboard based on existing medical registries. First, forty-nine national and international registries were analysed to identify common features such as benchmarking functionality. This was followed by technical realisation and implementation.

Results Each centre connected to oregis has secure access to the oregis dashboard, which displays key indicators for patients, diagnoses, and treatments. Dynamic filtering options allow targeted data analysis, comparing each centreʼs results anonymously with aggregated data from other centres. The dashboard uses Apache Superset data visualisation software [! etwas informativer]. Data is synchronised using an integrated oregis Konnektor module to anonymise patient data according to defined standards. Extensive security and privacy measures ensure data security, including server-side encryption, transport encryption, and two-factor authentication. The dashboard is part of a comprehensive privacy policy developed and validated for oregis by privacy experts.

Conclusion The number of centres connected to oregis is still growing. The new web-based dashboard allows flexible analysis of data and comparison with other centres without allowing conclusions to be drawn about any individual care centre; this ensures data privacy and independence in each centre. More features can be added to provide a more thorough overview of eye care in Germany as oregis grows.

Fazit

Bereits bekannt:

• oregis ist das digitale, hypothesenoffene Register der Deutschen Ophthalmologischen Gesellschaft (DOG).

• Durch Anschluss möglichst vieler Zentren ist die Abbildung der augenheilkundlichen Versorgungsituation in Deutschland das Ziel von oregis.

• Die in oregis gesammelten Real-World-Daten lassen sich für eine Vielzahl wissenschaftlicher Fragestellungen nutzen.

Neu beschrieben:

• Die Zahl der an oregis angeschlossenen Zentren wächst kontinuierlich.

• Das neue, webbasierte Dashboard ermöglicht es, die in oregis gesammelten Daten flexibel zu analysieren und mit anderen Zentren zu vergleichen, ohne Rückschlüsse auf einzelne Versorgungseinheiten zuzulassen.

Conclusion

Already known:

• The oregis registry is a digital system operated by the German Ophthalmological Society (DOG) for neutral data collection without offering interpretation or conclusions or focusing on any particular condition.

• The registry aims to reflect the ophthalmic care situation in Germany more accurately by connecting as many centres as possible.

• Real-world data collected in oregis can also be used to address a variety of scientific research topics.

New:

• The number of centres connected to oregis is growing continuously.

• The new web-based dashboard provides a versatile method of analysing the data collected in oregis and comparing the data with aggregated data from all other participating centres without allowing any conclusions to be drawn about any individual centre.

Keywords

Health services research - registries - benchmarking - real-world-data

Publication History

Received: 31 October 2024

Accepted: 11 November 2024

Article published online:
04 February 2025

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