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J Neurol Surg B Skull Base 2022; 83(06): 561-578
DOI: 10.1055/a-1934-9191
Review Article

Skull Base Registries: A Roadmap

Kara P. Parikh
1   Department of Neurosurgery, The University of Tennessee Health Science Center, Memphis, Tennessee, United States
,
Mustafa Motiwala
1   Department of Neurosurgery, The University of Tennessee Health Science Center, Memphis, Tennessee, United States
,
Andre Beer-Furlan
2   Department of Neurosurgery, Moffitt Cancer Center, Tampa, Florida, United States
,
L. Madison Michael
1   Department of Neurosurgery, The University of Tennessee Health Science Center, Memphis, Tennessee, United States
,
Sanjeet V. Rangarajan
3   Department of Otolaryngology-Head and Neck Surgery, The University of Tennessee Health Science Center College of Medicine Memphis, Memphis, Tennessee, United States
,
Garret W. Choby
4   Department of Otorhinolaryngology, Mayo Clinic Rochester, Rochester, Minnesota, United States
,
Varun R. Kshettry
5   Brain Tumor and Neuro-Oncology Center Cleveland Clinic, Cleveland, Ohio, United States
,
Sara Saleh 
6   Department of Neurosurgery, University of Michigan, Ann Arbor, Michigan, United States
,
Debraj Mukherjee
7   Department of Neurosurgery, Johns Hopkins Medical Institutions Campus, Baltimore, Maryland, United States
,
Claudia Kirsch 
8   Yale University School of Medicine Department of Radiology and Biomedical Imaging, New Haven, Connecticut, United States
9   Department of Clinical Dentistry, University of Sheffield, Sheffield, South Yorkshire, England
10   Mount Sinai Biomedical Engineering and Imaging Institute, Icahn School of Medicine at Mount Sinai, New York, New York, United States
,
Erin McKean
6   Department of Neurosurgery, University of Michigan, Ann Arbor, Michigan, United States
11   Department of Otolaryngology–Head and Neck Surgery, University of Michigan, Ann Arbor, Michigan, United States
,
Jeffrey M. Sorenson
12   Department of Neurosurgery, University of Tennessee Health Science Center College of Medicine, Memphis, Tennessee, United States
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Erratum: Skull Base Registries: A RoadmapJ Neurol Surg B Skull Base 2022; 83(06): e1-e1
DOI: 10.1055/s-0043-1760842

Abstract

Hospitals, payors, and patients increasingly expect us to report our outcomes in more detail and to justify our treatment decisions and costs. Although there are many stakeholders in surgical outcomes, physicians must take the lead role in defining how outcomes are assessed. Skull base lesions interact with surrounding anatomy to produce a complex spectrum of presentations and surgical challenges, requiring a wide variety of surgical approaches. Moreover, many skull base lesions are relatively rare. These factors and others often preclude the use of prospective randomized clinical trials, thus necessitating alternate methods of scientific inquiry. In this paper, we propose a roadmap for implementing a skull base registry, along with expected benefits and challenges.

Keywords

skull base - registry - multicenter study - patient reported outcomes - quality of life - database


Publication History

Received: 13 August 2022

Accepted: 29 August 2022

Accepted Manuscript online:
31 August 2022

Article published online:
12 November 2022

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